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HIV/AIDS-related stigma and discrimination

Originally, the word stigma meant a visible mark, such as a brand or tattoo, which was used to disgrace, shame, condemn, or ostracize a person. Now, stigma is used to mean a quality or condition that reduces a person who has it from a valued, respected person to a tainted, discounted one. In some cultures, being female or black is considered stigmatizing. Many cultures, which do not understand the biological origins of mental illness, stigmatize the mentally ill.

HIV/AIDS is one of the most stigmatizing medical conditions in modern history (Kalichman, 2004). Many communities direct unfavorable attitudes, beliefs, and policies toward people who have or who are associated with HIV/AIDS, including their loved ones, family members, close associates, and social groups (Brimlow, Cook, & Seaton, 2003). Some communities are less prejudiced toward people with HIV/AIDS than others.

Erving Goffman was a sociologist who originally developed the idea of social stigma (Goffman, 1963). In his work, he identified six dimensions that influence whether a personal quality or condition is stigmatizing. These are summarized in the table below.

Dimensions of HIV/AIDS-related stigma

DIMENSIONS OF STIGMA
(GOFFMAN, 1963)

DIMENSIONS OF HIV/AIDS-RELATED STIGMA (HEREK, 1990)

Concealability Can the condition be hidden from others? The less concealable a condition, the more stigmatizing it is.

Although concealable early in its course, later stages of HIV disease are rarely hidden from others.

Disruptiveness Does the condition interfere with social interactions and relationships?

HIV/AIDS disrupts social relationships.

Aesthetics Do others react to the condition's appearance with dislike or disgust?

HIV/AIDS physically disables and disfigures people, and is therefore aesthetically displeasing.

Origin Is the person responsible for having this condition in the first place?

The origin of HIV/AIDS is often, although not always, blamed on personal behaviors and choices.

Peril Can the person with the condition physically, socially, or morally contaminate others?

HIV is a high-peril condition, in that it poses physical risks to others.

Because HIV/AIDS is a stigmatizing condition, and because people do not want to be discriminated against, many people are hesitant to find out their serostatus or to seek treatment for HIV disease.

Discussion question: What can be done to reduce or eliminate HIV/AIDS-related stigma?

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